As I look to the future, I am informing, advocating and participating in metastatic breast cancer vigilance for a cure. While the mets bc community moves science towards a cure, I am participating in as many ways as I possibly can, in getting the scientific community to create and approve treatments that will allow mets thrivers to live with their cancer as a chronic condition. The three primary groups I am active in as I pursue these goals are:
utilizing these tools will allow us to move beyond simple awareness to action, and solution.
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March 28th 2016 I will celebrate my 5 year cancerversary of thriving as a metastatic breast cancer patient. In 2011 I was given 1-3 yr survival rate. Living to the 5 yr mark makes me what the cancer community calls an outlier. This is a GOOD thing. More and more women and men with mets bc are living beyond prognosis, as treatment puts our cancer into a chronic disease stat instead of a terminal disease stat. This is our goal as a community, to live with a chronic disease while waiting on a cure, rather than dying of a terminal disease.
Leslie's Cancer Confessions
Prior to being diagnosed with Mets bc, I had DCIS in 2001. I went through chemo, radiation and treatment with tamoxifen. That is the standard of treatment. Just a short six months into tamoxifen treatment, I was told I had developed the secondary cancer in the uterus. This is a common side affect of tamoxifen as is bladder cancer. At this point, the end of 2001 I had a complete hysterectomy. Putting the nail in the coffin of menopause. In the next 10 years, life was lived as a breast cancer survivor. I was so blinded by Pink culture that I believed cancer was no longer a threat. Two years before being told I had mets, I became sick and was misdiagnosed as having Fibromysalgia. A disease that has a lot of the same symptoms as mets cancer. Pain, fatigue, lack of energy ect.
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