WHERE I'M GOING

wHERE I'VE BEEN

wHERE I AM

​​As I look to the future, I am informing, advocating and participating in metastatic breast cancer vigilance for a cure.  While the mets bc community moves science towards a cure, I am participating in as many ways as I possibly can, in getting the scientific community to create and approve treatments that will allow mets thrivers to live with their cancer as a chronic condition.  The three primary groups I am active in as I pursue these goals are:

http://mbcn.org

http://metup.org

http://metavivor.org

utilizing these tools will allow  us to move beyond simple awareness to action, and solution.








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 March 28th 2016 I will celebrate my 5 year cancerversary of thriving as a metastatic breast cancer patient.  In 2011 I was given 1-3 yr survival rate.  Living to the 5 yr mark makes me what the cancer community calls an outlier.  This is a GOOD thing.  More and more women and men with mets bc are living beyond prognosis, as treatment puts our cancer into a chronic disease stat instead of a terminal disease stat.  This is our goal as a community, to live with a chronic disease while waiting on a cure, rather than dying of a terminal disease. 

 ​Leslie's Cancer Confessions

 Prior to being diagnosed with Mets bc, I had DCIS in 2001.  I went through chemo, radiation and treatment with tamoxifen.  That is the standard of treatment.  Just a short six months into tamoxifen treatment, I was told I had developed the secondary cancer in the uterus.  This is a common side affect of tamoxifen as is bladder cancer.  At this point, the end of 2001 I had a complete hysterectomy.  Putting the nail in the coffin of menopause.  In the next 10 years, life was lived as a breast cancer survivor.  I was so blinded by Pink culture that I believed cancer was no longer a threat.  Two years before being told I had mets, I became sick and was misdiagnosed as having Fibromysalgia.  A disease that has a lot of the same symptoms as mets cancer. Pain, fatigue, lack of energy ect. 

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